FIVE-YEAR-OLD Evan Fasciano’s condition causes his skin to grow at ten times the normal rate, leaving him at risk of life-threatening infection. Evan, from Goshen, Connecticut, was born with Harlequin Ichthyosis, a genetic disorder that leaves him with scales across his entire body. Suffering from the severest form of the disease, Evan is at constant risk of infection - requiring him to have two baths a day so 33-year-old mum De De can scrub off the excess skin. Currently there is no cure for Harlequin Ichthyosis, but despite his condition Evan remains a lively, happy child, who is incredibly popular at school and loves to play with his younger brother Cenzo.  Videographer / director: Steven Schloss Producer: Tom Midlane, Ellie Winstanley Editor: Jack Stevens
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