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Tag results for ichthyosis
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the boy whose skin grows too fast born different

five-year-old evanfascianos conditioncauses his skinto grow at ten times thenormal rate leaving him at risk of life-threatening infectionevan from goshen connecticutwas born with harlequin ichthyosis agenetic disorder thatleaves him with scales across his entire bodysuffering from the severest form of the disease evan is at constant risk of infection-requiring him to have two baths a day so 33-year-old mum de de can scrub off the excess skincurrently there is no cure for harlequin ichthyosis but despite his condition evan remains a lively happy child who is incredibly popular at school and loves to play with his youngerbrother cenzo videographer director: steven schloss producer: tom midlane ellie winstanley editor: jack stevens